1. Website Publisher

This website, accessible at « http://manifeste-eeds.fr », is published by Isabelle Boutron, , acting in a personal, non-professional capacity (hereinafter the “Publisher”).

Email Address: isabelle.boutron@manifeste-eeds.fr

Director of Publication: Isabelle Boutron

The purpose of this website is to publish and disseminate a Manifesto for the ethical and responsible reuse of research data, as well as to collect and publish signatures from individuals wishing to support it.

This Manifesto is a citizen-led initiative, developed in particular in the context of the implementation of the European Health Data Space (EHDS)) and its provisions regarding the secondary reuse of electronic health data.

It is not published on behalf of any establishment, research center, organization, or institution. Any professional functions or affiliations mentioned on the site are for informational purposes only and do not imply, unless explicitly stated otherwise, any commitment from the organisations concerned.

---

2. Website Hosting

Easter-Eggs
French limited liability company (SARL) with share capital of €42,000

RCS Paris 414 542 324 00044
APE Code 6201Z

VAT Number: FR 72 414 542 324
Head Office: 44-46 rue de l’Ouest – 75014 Paris – France

---

3. Intellectual Property

The texts published on this website are protected by intellectual property law.

The Manifesto is intended for wide dissemination. It may be reproduced and shared in its entirety, without modification, provided that its title, source, and the address of this website are cited.

Other content on the website may also be reproduced and shared without modification, provided that the source and the address of this website are cited.

Any modification or adaptation of the website's content is prohibited without prior authorization, subject to exceptions provided by law.

---

4. Signatures and Affiliations

The names, first names, job titles, qualifications and institutional affiliations appearing in the list of signatories are provided by the signatories themselves.

Any reference to an institution, establishment, research centre, company, association or other organisation is intended solely to identify the affiliation declared by the signatory.

Each signatory endorses the Manifesto in an individual capacity. Accordingly, reference to a job title or institutional affiliation does not imply any position, commitment or institutional endorsement by the organisation concerned, unless explicitly stated otherwise by that organisation.

The Publisher reserves the right not to publish, or to remove, any signature where there are reasonable grounds to believe that it involves identity theft, contains clearly inaccurate information, or infringes the rights of a third party.

Anyone wishing to report an error concerning their signature, request that the published information be amended, or withdraw their signature may contact the Publisher at: isabelle.boutron@manifeste-eeds.fr

---

5. Personal Data

The Website processes personal data in connection with the collection and management of signatures to the Manifesto.

The categories of personal data collected, the purposes and legal bases of the processing, the conditions under which certain data may be published, the applicable retention periods, and the rights of data subjects are described in the Privacy Policy available on the Website.

For any questions concerning the processing of personal data, or to exercise your rights under applicable data protection law, you may contact the Publisher at: isabelle.boutron [a t ]manifeste-eeds.fr

In accordance with Regulation (EU) 2016/679 of 27 April 2016 (General Data Protection Regulation – GDPR) and French Law No. 78-17 of 6 January 1978 on Information Technologies, Data Files and Individual Liberties, as amended, you have the right to access, rectify and, where applicable, erase your personal data, as well as the right to restrict or object to its processing, subject to the conditions provided for by applicable law.

You also have the right to lodge a complaint with the French Data Protection Authority (Commission nationale de l’informatique et des libertés – CNIL).

---

6. Liability

The information published on the Website, including information relating to signatories, is provided for information purposes only.

Information concerning signatories is provided by the signatories themselves. The Publisher cannot therefore be held liable for the accuracy, completeness or reliability of such information.

The Publisher endeavours to ensure that the information published on the Website is accurate and up to date but cannot guarantee that it is free from errors or omissions.

The Publisher reserves the right to correct or remove any information that is clearly inaccurate or has been duly reported as inaccurate.

The Publisher cannot be held liable for any temporary interruption or unavailability of the Website resulting from maintenance, technical difficulties or circumstances beyond the Publisher’s reasonable control.

---

7. Contact

For any questions regarding the website, the Manifesto, or a published signature:

isabelle.boutron@manifeste-eeds.fr